Wednesday 9th July



Guess who's going home?!

Yes, it's true. After looking really miserable and feeling sore in the morning (after a slightly better but still interrupted sleep for mummy and I) - despite having had my drip removed - by lunchtime I was feeling totally tip top, and was starting to properly eat so the doctors and nurses decided I was better off back home.

 

 

 

After daddy came up at lunchtime I promptly fell into a deep sleep, which meant by the time he had collected his stuff to take us home, I was totally zonked and didn't enjoy being woken up to go home. I found that very difficult which meant that I was in tears and very sad most of the way home (not helped by a long wait for a delayed train). I was feeling very sore around my tummy once being removed from my hospital bed, and when we eventually got home, it was lovely to see Nadia and Grandma but all I really wanted to do was sleep.

 

So I won't be going to nursery for the rest of the week - the hospital said that it is too risky that I might get bumped as I would be in a lot of pain (I understand that). I also have to avoid anywhere with sand, dirt or water as it could infect my wounds around my belly (I'm not even allowed a bath for a week!). On top of that I'm not to do any strenuous exercise (no trampolining or cycling - what am I going to do?!?!?) for 2 weeks.

 

Mind you, the main thing I probably have to be wary of are Nadia's mega-hugs and tickling! Planning to take it mega easy over the next few days, I am shattered. Thanks for all your kind wishes,

 

Rosa (Beanbag) xx

Tuesday 8th July

A day of ups and downs

It was a very broken night's sleep for me and mummy. I was still quite sad in the morning and a bit sore, but by lunchtime the doctors and nurses were pleased enough with my progress to take me off my drip which is giving me all the essential stuff I need. They also removed my colostomy bag.

 

OK, I'll give this a go

 

I even managed a couple of chicken nuggets at lunchtime, but I couldn't stomach much. I have been told to drink plenty (but it's not really been enough). Daddy took me to the toilet for the first time at lunchtime (he is working at the London office so he can see me first thing, at lunch and in the evening) - he carried me there and I walked gingerly back to my bed. Still, it's all progress!

 

Not at my best

In the evening I ate a sausage roll and soon after was sick. I was sick again not long after (hey it may have been the morphine), so, looking visibly weaker, the nurses decided to put me back on the drip overnight. I was still really sore in my stomach. Sabina came to visit me which was really nice.

Still hoping to get home over the next couple of days, but feels a bit more distant this evening.

I'm off to get some more z's.

Loads of love,


Rosa Samosa x

Monday 7th July

The big day has come!

Today was a big day for me today. I finally went to GOSH (Great Ormond Street Hospital) to have an operation on my kidney to help me wee properly. I was in keyhole surgery for just over 3 hours but mummy and daddy were there when I came to (sort of) in the recovery room. I have been taking a lot of morphine, in fact, I'm allowed to say I need more if I feel pain and someone comes along and presses a button so I get more! My voice was very croaky and I struggled to speak at all when I first woke up - it reminded mummy and daddy a bit of when Nadia got her tracheostomy I think.

I woke up a couple of times once I was on the Island ward - the first time after a bit of weeping I said I wanted a biscuit. I managed to eat that and then another one, but then it felt quite painful around my tummy. The second time I asked mummy for a pain aux raisins (get me), but I found that a struggle. I am very sleepy and need to get my rest, but the consultant and doctors are happy with the surgery so for now I have a colostomy bag attached and a drip into my arm.

With any luck I will be out before Thursday. Mummy is staying the night so I hope she gets some sleep!

R xx

Waiting for the op, watching telly

The nurse draws a smiley face on my leg to make sure they operate on the right side!!

Daddy tries to distract me by taking selfies, just before going down to the theatre

 

In recovery...

Two out of the three war wounds

Back on the ward

Awake but groggy (nice biccie though!)